Friday, September 27, 2013

him

 

headphones

Drew is at the stage where he says so much funny stuff and it’s hard to keep track of.  So, I usually save it in my phone when I remember, and then try to update later. 

Drew is really outgoing for the most part.  He likes to meet other kids and talk to people.  Awhile back, we were at an Aggie game.  Drew saw a little girl and wanted to talk with her.  He ran right up to her and asked her what her name was.  She responded appropriately.  Then Drew stated “I’m buzz lightyear” in an attempt to impress her.  Needless to say, she wasn’t. 

One of Drew’s favorite places to go is to WalMart.  Well, whenever we go, he has some new quip that he yells or says to people as we are shopping.  Here they are:

Whenever we check out, he says to the checkers as he unloads our cart,  “hi, how are you doing today?”  Usually catches them off guard.

He runs by people shopping in the store and yells (really yells), “see ya sucker”

If he feels people are in his way he will tell them “Excuse me please, get out of my space”.  We are working on being polite.

When people are shopping behind us in the isles, he will turn around in the cart and and yell at them to “stop following me” 

I took the boys to get their flu shots last week.  Drew did great.  He only cried for a second.  Afterwards, he insisted that he didn’t have a shot, but it was the band-aid they put on his leg that had hurt him. 

Drew loves to cheer for the aggies.  Right now in football, he’s quite interested.  The aggies have a great quarterback right now and when he cheers for him, he yells, “go Animal” 

Whenever I ask Drew if he wants a piece of cheese he gets very upset.  “not a piece, a whole cheese”

Famous Drew quotes:

“hell sol” instead of El Sol a restaurant we eat at.

“Neglos” – he means legos but can’t seem to get it right. 

“Giant coke makes me crazy” – referring to Diet Coke

“I can see” – while at the eye doctor trying out his new glasses prescription

 

newglasses

preview

I got my two boys matching shirts and shoes, fixed their hair, and took them outside for a quick jaunt with the camera the other morning.  I was hoping to get some awesome pictures of two perfect little boys, smiling, and posing just the way I wanted.  Instead, I’m pretty sure I got a preview of my next 15 years.  Please.  Wish me luck. 

Attempt #1

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Reset and attempt #2

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ps… if you are thinking Drew looks like he’s enjoying this.  believe it. 

don’t worry about Hank.  he got away. 

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Okay, maybe we could do better on the grass. 

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nope that didn’t work either.  lots of dragging and crying. 

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still smiling. 

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Thursday, September 12, 2013

my two sons

It’s been a few weeks since we got home from our last cabin trip.  It was a great get away after a stressful week.  Why was our week a bit stressful you ask?  Well, it was just super busy.  Mom and Dad finally sold their house.  But since they can’t live at the cabin, they needed a place to stay until their other house is built.  So, they moved in.  We were busy getting everyone settled.  Plus, Hank had two doctors appointments that week. 

Some of our adventures in Montana…

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Hank was at the cabin too, in case you were wondering. 

At Hank’s last cardiology appointment they made a big leap with his pacemaker.  They turned him from 100 to 80 for his resting heart rate.  I was a bit surprised about the jump but assumed it was what he needed.  Plus, conserving battery life in his pacemaker is a priority for him since he’s 100% paced (meaning he has no heart rate that kicks in, it’s just too low).  Since his appointment we had noticed that he was having a hard time keeping his oxygen saturations up.  His normal was on 3/4 to 1 liter of flow he would have numbers in the 94-98% range.  When we go to the cabin, we can usually keep those numbers up around 2-2.5 liters.  We went to the cabin after his appointment, then we came home, but we were unable to keep his numbers up with his normal flow.  Weird.  I thought maybe he just had to get adjusted to the new rate.  I checked with cardiology just in case… they said his change shouldn’t effect his lung function.  So, we went on another week.  At 2.5 liters, he could barely keep his levels above 90.  So I put in a call to pulmonology.  In the meantime this happened. 

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Can you see it?  Drew got an awesome spider bite on his leg that turned into a lovely cellulitis.  Thank heaven for the great guys at work who helped me out because I was supposed to be at the hospital for work, not for my 3 year old.  After a week plus of antibiotics, he is much better. 

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Anyway, later in the day, I heard back from pulmonology.  I was advised to take Hank in for a chest x-ray with the pediatrician, because really, it was agreed by our pulmunologist that Hank’s heart rate change shouldn’t effect his lung function that much.  Long story shorter, x-ray was clear, whew.  Cardiology called.  Arrangements were made for St. Jude Rep (pacer rep) to come to Logan and turn Hank’s rate up to 90 bpm.  The next morning, Hank’s rate was changed and there was immediate results.  We could turn his oxygen flow down to his normal and get great numbers.  What a relief.  That kid wants to do everything his way. 

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Found this on facebook

Oh, one more thing.  Check out this amazing quilt block that was made and dedicated to Hank.  It was made by the awesome people who work with the Congenital Heart Defect (CHD) Awareness Quilt Project.  Read about their amazing organization here.  Hank’s block will be on a quilt with other adults and children with CHD and displayed around the country to spread awareness about CHD.   

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(CCHB – Congenital Complete Heart Block)