Survival

Well, I survived being home by myself with two kids.  Surprising to me.  My kids survived too!  Probably surprising to everyone else.

Hank’s new favorite things.

Hand’s in the mouth.  Constantly.    He has also figured out how to suck on his bottom lip and will do that when he can’t find his hands. 

He likes to hang onto toys and will occasionally get them to his mouth also. 

He loves to lay on the floor and has been working very hard at rolling over for the past week.  He had success yesterday, much to his dismay and threw a fit afterwards. 

He successfully pulls his cannula out all the time and sucks on that too!  Delicious.  (Cute face though).

As far as his “other stuff”.  We have been able to wean him some on his oxygen, but very slow.  Since no one wants to manage his oxygen (pediatrician, cardiology), we are being referred to a pulmonologist.  That’s okay with me though.  Can’t hurt. 

We have cut down on his medications considerably.  Instead of giving him drugs 6 times during the day, we are down to two times.  His only medications are his diuretic (which he is growing out of) and his sodium chloride, which we are trying to stop.  He sure loves that salt (not really) and when we give it to him, he spits and gags himself while throwing a fit for about 10 minutes.   I don’t think we will grow out of that.   Joyful.  

Now Drew. 

Drew has started getting busy again.  He just got back from a fun vacation up to our cabin with cousins and grandma and grandpa (I’m jealous).  He gets to start school up at USU Development Lab next week.  I think he will love it.  (At least he did last year). 

He is sure getting big fast.  He likes to trick mom and dad at bedtime and thinks if he sleeps on the floor he can sneak around a lot more and stay awake.  Funny boy.  I often hear him right next to his door whispering who knows what when he should be in bed. 

Here is a first for Drew.  The other day, he drew this picture and proceeded to tell me it was daddy.  This is his first picture he has actually done of a person.  Looks like daddy to me.  When he drew it, he said “Daddy, eyes, and nose… a big one.”  Smart little kid. 

See, things are getting back to normal around here.