Adventures of Hank

Hank is so funny.  Yesterday we ran some errands with my mom.  We stopped at Tai Pan in Logan.  When we got the kids out of the car, Hank just started getting really upset and threw a huge tantrum.  Mom scooped him up and we went into the store.  While we were shopping, he was ok, but randomly he would tantrum and throw fits.  I could not figure out what was setting him off.  While Drew and my mom paid, I took Hank out and again in the parking lot he started up again.  Scanning around, I figured it out.  Taco Time.  Every time he saw Taco Time and we didn’t go straight over there, he got upset.  Sure enough, we went through the drive through and got Mexi-fries and he was happy.  Silly boy. 

He’s still doing great in school and working so hard.  Right now they are working on eating sandwiches and yogurt.  He’s also been working on pointing to body parts.  I have reports from school that he can match up uppercase and lowercase letters.  Smart boy.  He also does jigsaw puzzles.  That one surprised me.  We’re so happy he’s working so hard. 

Hank found a new food that he will actually eat.  The only foods he really eats are:  mac and cheese, apples, pepperoni, cheese, goldfish crackers (Steve always tells Hank that a boy cannot live off of goldfish alone), potato chips, fries, and McDonalds Nugget Happy Meal.  He has picked up milk again after a 4 month hiatus so we are hoping he will start gaining his weight back.  My mom also got him to eat some bites of a fat boy and he finally enjoyed some cake the other night for Bill’s birthday (carrot cake – delicious). 

His medications are maxed out for his weight and we are hoping that will improve his heart function.  He’s still getting lovenox shots to keep his blood thin.  He’s been a sport taking at least 9 syringes of medications every day.  We will find out how his function is doing in about 4 weeks and are anxious to see.  He also got a shipment of beads in from all of his procedures, medications, etc from Beads of Courage.  I’m excited for when he gets bigger and can string them up and see all those cool beads he earned by being so brave!

Hank has also been interacting a lot more with his brother which has been so nice for Drew.  The other day, he noticed Drew washing himself in the bath and stood and copied what Drew was doing.  Hooray for learning by watching.