red

I think my baby boy Hank is a redhead?







Let's hope he stays that way.



Posted from my iPad

Wow! 5 weeks.

Where has the time gone?  I can’t believe we have been here (at Primary Children’s) for 5 weeks.  Crazy. 

Hank’s news:

• Now weighs 1580 grams = 3 pounds and 7 ounces.  What a champ!
• After 3 weeks on CPAP, has switched to high flow nasal cannula again.  Let’s hope he stays on it this time!  My tough boy tolerated the CPAP well and didn’t need any scheduled medications to keep him calm. 
• His CRP is down again to a normal level (0.7).  So, antibiotics are done.  This means no more intravenous medications at the moment. 
• Poor guy had to have a viral panel done (it was negative-whew) because his neighbor tested positive.  Yay for no viral illness. 
• His second eye exam came out good.  He will have them every 2 weeks until they are fully developed. 
• Heart ECHO showed no change from last time. 
• Head ultrasound had a few changes and will be followed again next week.  Thank heavens Hank acts appropriately for his age and size.  I still worry though.
• Pacemaker still works great. 

What has Drew been up to?  Not too much. 

There is a fun museum at Temple Square that he really enjoys. 

He loves to walk outside.  He has discovered bugs recently. 

 

He has had a few play dates, which is good for him.  He also has a scheduled play date every Monday with my cousin Heather’s girls.  (Thanks Heather for meeting up with us every week)

Today Hank went from this…

  

 

to this. 

He has done really well on the nasal cannula so far.  Hopefully he continues.  He also seems to enjoy having a little more freedom of movement. 

Happy note:  Hank snuggled with me today for about an hour.  He tolerated it well, so we hope there will be more in the near future.  It’s good for him and good for Mom and Dad. 

Grandma Mary

Mary Joanne (Conely) DeMar Decker (1932 - 2012)

LOGAN - Mary Joanne Conely DeMar Decker, 79, of Logan, died peacefully Friday, April 13, 2012, after a long period of declining health.
She was born in St. Paul, Minn., to Richard Albert and Marjorie Vincent Conely on Nov. 14, 1932. As a child, she and her family moved to Salt Lake City, where she graduated from East High School and then briefly attended Utah State University. She later attended the University of Utah.
She married William McAdam DeMar. They had four children, then divorced. Later in life she married Webster Decker. The couple lived in Salt Lake City and Hebgen Lake, Mont. They later moved to Bunkerville, Nev.
Mary worked to support her family in various bookkeeping positions. She later ran her own real estate company, Ye Old Pioneer Real Estate Company.
She was a member of The Church of Jesus Christ of Latter-day Saints. She was a leader in the Nevada Republican Women's and the Daughters of Utah Pioneers organizations. She was active in many community endeavors and civic committees in Bunkerville. She was a strong supporter of animal protection agencies, and took many a stray dog - and a few cats too - into her fold.
Mary was preceded in death by her parents, her husband and one sister, Rhoda Bown. She is survived by her sisters Jane Watson of Arizona and Betty Anderson of Salt Lake City; three daughters, Suzie (Mike) Stones of Logan, Renee (Ron) Freeze of Eagle Mountain and Teena (Kevin) Bridges of Salt Lake City; one son, Bill DeMar of Logan; three stepsons, Rod (Christine) Decker of Salt Lake City, Craig (Alison) Decker of Mesa, Ariz., and James Weston Decker of West Valley City, Utah; two stepdaughters, Jeanne (Robert) Griffiths of Shanghai, China, and Marci Decker of Boulder, Colo.; 21 grandchildren and numerous great-grandchildren.
The family would like to thank Dr. Jeffrey Strong for his compassionate care, and the staff of the Terrace Grove Assisted Living Center for their amazing love and support for Mary during the past few years.
A gathering for friends and family will be held at 2:30 p.m. April 29, 2012, at the Terrace Grove, 345 N. 200 West in Logan, Utah.
In lieu of flowers, the family suggests donations in honor of Mary be made to the Cache Humane Society, 2370 W. 200 North, Logan, Utah, 84321.
Arrangements are by Allen-Hall Mortuary in Logan.
Condolences may be expressed online at www.allenmortuaries.net.

Published in Logan Herald Journal from April 21 to May 5, 2012

Bath Night

All shiny and clean.














Hank gained an ounce today. Finally some progress.

Posted from my iPad

a month (4 weeks)

Steve is in Anaheim with his robotics team this week, so I have been spending my time juggling both my kids.  Luckily, I have babysitters for the youngest (expensive babysitters), and my mom is here in Salt Lake with us, so between the two of use, we are good.

 

Henry is doing pretty good.  He weighs 1410 grams, 3 pounds and 1 ounce.  Yay for not being in the two’s anymore.  He has been getting a tour of the NICU, they changed his bed space again.  We don’t mind though.

 

Some other things…

• He is still on vancomycin and gentamicin, only 5 more days of those.  His CRP has been coming down. 
• Continuing CPAP, which is miserable.  He doesn’t seem to mind too much though.  We have been weaning it down. 
• Eye exam was good.  He still has a ways to go before he is fully developed, but doesn’t look like there are problems. 

I have found out that Henry likes to sleep with his hands behind his head.  He does it every single night I go check on him.  Funny baby. 

I have been able to help with Hank’s “cares” more.  Diaper changes, mouth cleanings, pulse checks.  It’s nice to feel like I’m doing something other than just pumping all day.   I did get to hold him again the other night while his nurse changed his bedding, but just for a second. 

Can’t wait till he gets to go home!

Made by hand

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relaxing