Wow! 5 weeks.

Where has the time gone?  I can’t believe we have been here (at Primary Children’s) for 5 weeks.  Crazy. 

Hank’s news:

• Now weighs 1580 grams = 3 pounds and 7 ounces.  What a champ!
• After 3 weeks on CPAP, has switched to high flow nasal cannula again.  Let’s hope he stays on it this time!  My tough boy tolerated the CPAP well and didn’t need any scheduled medications to keep him calm. 
• His CRP is down again to a normal level (0.7).  So, antibiotics are done.  This means no more intravenous medications at the moment. 
• Poor guy had to have a viral panel done (it was negative-whew) because his neighbor tested positive.  Yay for no viral illness. 
• His second eye exam came out good.  He will have them every 2 weeks until they are fully developed. 
• Heart ECHO showed no change from last time. 
• Head ultrasound had a few changes and will be followed again next week.  Thank heavens Hank acts appropriately for his age and size.  I still worry though.
• Pacemaker still works great. 

What has Drew been up to?  Not too much. 

There is a fun museum at Temple Square that he really enjoys. 

He loves to walk outside.  He has discovered bugs recently. 

 

He has had a few play dates, which is good for him.  He also has a scheduled play date every Monday with my cousin Heather’s girls.  (Thanks Heather for meeting up with us every week)

Today Hank went from this…

  

 

to this. 

He has done really well on the nasal cannula so far.  Hopefully he continues.  He also seems to enjoy having a little more freedom of movement. 

Happy note:  Hank snuggled with me today for about an hour.  He tolerated it well, so we hope there will be more in the near future.  It’s good for him and good for Mom and Dad.