Tuesday, January 20, 2015

Our Schedule

I feel like we have finally got in back of the swing of things.  It took some time after the holiday to get it back together, but I think we have done it! 

Monday is our quiet day.  It follows our quiet Sunday, so minus work, that’s our weekend.

Hank has so many days of preschool.  He goes to a regular preschool at the university three times a week.  Then, twice a week he goes to a transition preschool after his regular preschool.  He also has a therapy preschool that he does twice per month.  On top of that, he has 3-4 different therapists visit him at home and random Dr. appointments here and there.  He is such a great sport and has been doing so well.  We have seen so much progress lately.  Some of the things Hank has started doing in the last few weeks.

  • Does hand actions to 3 different songs, Ram Sam Sam, Wheels on the Bus, and Itsy Bitsy Spider
  • Communicates to us when he is “all done” by putting his arms in the air and moving them up and down
  • Imitating animal sounds.  He does kitty, dog, rooster, bear, and cow.
  • Follows dances along with the Wiggles and Mom and Dad
  • Pushes cars along the floor instead of just watching the wheels spin
  • Waves bye bye consistently at appropriate times
  • Started saying “ya yee” when Daddy comes home. 

Seriously, I don’t think I could be more proud of him.  Such a strong kid!

IMG_5864

Health wise he is so great and just had his first transmission with his new pacemaker.  His leads are in great working condition and right now, he is estimated with 5.5 years left on his new generator.  Hopefully as he grows and tolerates a lower heart rate, his generator (battery) life with increase. 

Oh and the oxygen is gone for good!   We dropped of the last of our supplies to home care this week.  No offense to them, but I really don’t want to see them ever again. 

 IMG_5845

Our church is at 1pm now, which is terrible.  It’s right during Hank’s nap time, so either Steve or I have to stay home with Hank and the other takes Drew.  This text came from Steve one day during sacrament meeting time. 

 IMG_5684

Drew has preschool most days of the week, plus tennis twice a week.  He was so happy to get back to preschool and his friends. 

IMG_5758IMG_5762

Lately, it seems his busy day is Saturday.  It starts with bowling league on Saturday mornings, which has been amazing. 

At bowling, he gets to play with other kids his age and practice two games.  He works on taking turns and cheering on other kids when it is their turn to bowl.  He has improved his game (yes he uses bumpers, but that’s all) and has had a high game of 88 (I think).  He has also earned two patches, one for a game above 75, and one for a series (2 games) to total 150. 

IMG_5677IMG_5799

Saturday afternoons have been spent at Beaver Mountain for ski school.  He will only do that this month, then spend the rest of the winter practicing.  He has enjoyed it a lot and has done a great job.  Steve finally has a ski partner (It’s too cold for me). 

IMG_5681IMG_5806IMG_5680

The rest of the time is play.  Don’t worry, we have plenty of time for that.   

IMG_5796IMG_5805

Wednesday, January 14, 2015

holiday season

 

We have had a very busy holiday time this year.  Between post-op, sickness, work, family, and holiday festivities, I haven’t had time to document anything.  Except on instagram.  I guess instagram stole my blog.  Be ready for lots of pictures. 

Before Christmas

Sandals and socks in winter                             Heart spill on the kids table                     Lounging

IMG_5361IMG_5363IMG_5376

Drew’s snowflakes                                    Hank without his tubing                         Drew and his nanny Casey

IMG_5392IMG_5395IMG_5397

Drew’s melting snowman                           The cord that caught on fire in our garage                   Pincushion project

IMG_5402IMG_5405IMG_5432

More Santa Visits                                       Santa Doodle                                      Drew’s gingerbread

IMG_5412IMG_5415IMG_5433

Hank in his footies                      Drew at an Aggie game                           Cousins at Firehouse

IMG_5434IMG_5449IMG_5458

 

Christmas

            Santa left blankets for the boys on the porch          Hank’s Loot                                       Drew’s Loot

IMG_5460IMG_5464IMG_5466

Grandma got them a teepee                     Christmas morning                                 Christmas night swim

IMG_5468IMG_5474IMG_5480

After Christmas

Hank loves the teepee                             House pets                                              Enjoying grandma’s tree

IMG_5504IMG_5513IMG_5573

Drew ready for church                                A ghost                                                  Cookies at grandmas

IMG_5582 IMG_5594IMG_5601

The final products                    Delicious                                 The whole crew

IMG_5602IMG_5603IMG_5608

Drew enjoying the teepee              A puppet made by Grandma Williams         Hank’s footies again

IMG_5618IMG_5646 (1)IMG_5649 (1)

Drew was famished                                    Little Rascal                                        Drew’s Ninja Hat

IMG_5658IMG_5664IMG_5670

The boys at their favorite, Buffalo Wild Wings               Prepping for heart week

IMG_5672             IMG_5673