Snapshot

 

Some day I may actually get out my real camera and take some fun photos.  Until then, my phone will have to suffice.   Here is a snapshot of our life. 

Our Schedule

I feel like we have finally got in back of the swing of things.  It took some time after the holiday to get it back together, but I think we have done it! 

Monday is our quiet day.  It follows our quiet Sunday, so minus work, that’s our weekend.

Hank has so many days of preschool.  He goes to a regular preschool at the university three times a week.  Then, twice a week he goes to a transition preschool after his regular preschool.  He also has a therapy preschool that he does twice per month.  On top of that, he has 3-4 different therapists visit him at home and random Dr. appointments here and there.  He is such a great sport and has been doing so well.  We have seen so much progress lately.  Some of the things Hank has started doing in the last few weeks.

• Does hand actions to 3 different songs, Ram Sam Sam, Wheels on the Bus, and Itsy Bitsy Spider
• Communicates to us when he is “all done” by putting his arms in the air and moving them up and down
• Imitating animal sounds.  He does kitty, dog, rooster, bear, and cow.
• Follows dances along with the Wiggles and Mom and Dad
• Pushes cars along the floor instead of just watching the wheels spin
• Waves bye bye consistently at appropriate times
• Started saying “ya yee” when Daddy comes home. 

Seriously, I don’t think I could be more proud of him.  Such a strong kid!

Health wise he is so great and just had his first transmission with his new pacemaker.  His leads are in great working condition and right now, he is estimated with 5.5 years left on his new generator.  Hopefully as he grows and tolerates a lower heart rate, his generator (battery) life with increase. 

Oh and the oxygen is gone for good!   We dropped of the last of our supplies to home care this week.  No offense to them, but I really don’t want to see them ever again. 

 

Our church is at 1pm now, which is terrible.  It’s right during Hank’s nap time, so either Steve or I have to stay home with Hank and the other takes Drew.  This text came from Steve one day during sacrament meeting time. 

 

Drew has preschool most days of the week, plus tennis twice a week.  He was so happy to get back to preschool and his friends. 

Lately, it seems his busy day is Saturday.  It starts with bowling league on Saturday mornings, which has been amazing. 

At bowling, he gets to play with other kids his age and practice two games.  He works on taking turns and cheering on other kids when it is their turn to bowl.  He has improved his game (yes he uses bumpers, but that’s all) and has had a high game of 88 (I think).  He has also earned two patches, one for a game above 75, and one for a series (2 games) to total 150. 

Saturday afternoons have been spent at Beaver Mountain for ski school.  He will only do that this month, then spend the rest of the winter practicing.  He has enjoyed it a lot and has done a great job.  Steve finally has a ski partner (It’s too cold for me). 

The rest of the time is play.  Don’t worry, we have plenty of time for that.   

holiday season

 

We have had a very busy holiday time this year.  Between post-op, sickness, work, family, and holiday festivities, I haven’t had time to document anything.  Except on instagram.  I guess instagram stole my blog.  Be ready for lots of pictures. 

Before Christmas

Sandals and socks in winter                             Heart spill on the kids table                     Lounging

Drew’s snowflakes                                    Hank without his tubing                         Drew and his nanny Casey

Drew’s melting snowman                           The cord that caught on fire in our garage                   Pincushion project

More Santa Visits                                       Santa Doodle                                      Drew’s gingerbread

Hank in his footies                      Drew at an Aggie game                           Cousins at Firehouse

 

Christmas

            Santa left blankets for the boys on the porch          Hank’s Loot                                       Drew’s Loot

Grandma got them a teepee                     Christmas morning                                 Christmas night swim

After Christmas

Hank loves the teepee                             House pets                                              Enjoying grandma’s tree

Drew ready for church                                A ghost                                                  Cookies at grandmas

 

The final products                    Delicious                                 The whole crew

Drew enjoying the teepee              A puppet made by Grandma Williams         Hank’s footies again

Drew was famished                                    Little Rascal                                        Drew’s Ninja Hat

The boys at their favorite, Buffalo Wild Wings               Prepping for heart week